Scott Booker & The Woozy Wobbles


My name is Scott Booker, and at the age of 44 my life started spinning out of control. Literally!  I was driving to work one day, when all of a sudden everything around me started spinning in my head, I got extremely dizzy and I felt like I was going to vomit and pass out.  Somehow, I managed to get my car off to the side of the road without having a major accident.  Once I got to the side of the road, I opened up the car door and threw up; my head still spinning.  I had no idea what was happening.

It is now 8 months later and my life has changed drastically. Although it took a very long time (more details about that later), I was finally diagnosed with Ménière’s Disease.

Meniere’s disease is a disorder of the inner ear that causes episodes in which you feel as if you’re spinning (vertigo), and you have fluctuating hearing loss with a progressive, ultimately permanent loss of hearing, ringing in the ear (tinnitus), and sometimes a feeling of fullness or pressure in your ear.

That is the definition that Doctors give those of us suffering with this debilitating illness. The above definition does not even begin to explain what having Meniere’s is like.

So, I have started documenting everything about my journey with Meniere’s and I am putting it into a book so that others may benefit from my story.

One of the items not listed in the definition above, is that you are constantly dizzy.  You often times stumble around, unable to get your bearings, find your footing, run into walls or even have drop attacks (which I will discuss more later as well).  One thing that I strive to do is to maintain my sanity and sense of humor, so I like to call all of this “Having the Woozy Wobbles.”

So, the name of my book is going to be called “The Woozy Wobbles – My Journey With Ménière’s Disease.   Sense I am still struggling to even function on a daily basis, this book may take awhile to get done, but my mind is made up and I am determined to never lose hope and to always keep fighting.




So….later today I am going to have the first of a few “Streptomycin” injections. This is an antibiotic that is used to treat a number of things…but one of them is Menieres. I am now going on 2 years of dealing with this illness and I have tried many different meds, therapies, surgeries, injections, etc….and nothing has seemed to help. My symptoms are still bad (if not worse) and now that I am completely bilateral (Menieres in both ears)…things are only looking more dim. So…after talking things over with my Oryntologist…who is the one Doctor that I have the most trust in…I have chosen to go this route.

What does that mean? Well…it means….that although it will hopefully help with my Menieres symtoms (Vertigo, dizziness, nausea,etc) I am probably going to go deaf.

The worst part…is that we don’t know if it will help…but they are hopeful. But the chance of my going deaf (in both ears) is about 90-100% – Now…I will probably be a good candidate for cochlear implants….but not sure if my insurance will cover it.

I think what scares me the most…is that I won’t be able to hear Rene’s voice and my Mom’s voice anymore. And I won’t be able to hear music anymore. That I will never hear Kelly Clarkson sing again! Or that…I will lose my hearing and nothing changes or improves.

I am scared. I am sitting here crying….scared to death. But I know that this is the best next option for me.

Thank you for letting me vent…and “lending me your ear”

Obviously…I will always try to keep my sense of humor…no matter what.

Think Positive…


I am always having people tell people to “Think Positive” and to “Stay Positive” and that “Everything will be ok.”

I honestly and truly hate this.  I mean…I know they are trying to help.  And I appreciate the love and support that they are trying to give.

But sometimes…Being Positive and Thinking Positive….just….isn’t….possible.

And people don’t get that.  And I understand.  I have been on the other side.  I have seen other people suffering and I want to do and say something to help.  And I never really know what to say or do.

So…today…I have made the commitment to myself that if anyone tells me to THINK POSITIVE or to BE POSITIVE….

I am just going to think of the quote above!  And then the person that is trying to support me is going to think I have gone mad since I will probably start chuckling…and then not be able to stop.  And although I will try to stop…it will only get worse and then the laughing out loud will commence and I will look like a damn fool.

But I am good with that!  I am positive that I am good with that!

Medications and Side Effects


So…I am going on 1 3/4 years with Menieres now….and one thing that I have quickly realized over the course of time is that all…AND I MEAN ALL…of my medications interact poorly with each other.

And it mainly is due to the fact that each one counteracts each others side effects.

For example…I take a medication that helps me with my nausea.  This medication has a side effect of “headaches”.  I take a medication for headaches that has a side effect of “nausea”

Now…both of these medications say possible side effects can be nausea and headaches.  WTF???  You are giving me a medicine to relieve something that has a side effect that can induce the exact same problem??

And all of the medications tell me I shouldn’t drink alcohol with them.  WHY THE HELL NOT?  This freaking disease makes me look and act drunk….I might as well get to enjoy something from it??

Now….don’t be alarmed….I am not drinking 20 beers with my 10 Valium.  Cause heaven knows….that would make me nauseated!

Brain Fog Sucks


Still…to this day….BRAIN FOG is one of the worst things about this F**King disease.

I hate not remembering.

I hate saying things completely wrong…even though what is in my head is correct.

I hate that I sound like an idiot when I talk sometimes.

I hate that I can’t remember even the simplest of things.

I….what was I talking about???

Did You Ever Stop To Think…


You know….there was a time when I first heard this quote….and it made me truly laugh out loud. I have seen and heard this exact thing happen to many a person, including people close to me. And at the time…it seemed funny.

But not so much anymore.

As Meniere’s and Fibromyalgia are eating away at my body…they are also eating away at my mind. Brain Fog is a symptom of BOTH of these illnesses….and honestly…it is probably one of the things that makes me the most depressed.

“Brain fog, also commonly known as brain fatigue, can be a mild to severe episode of mental confusion that can strike without warning. When this occurs, it is common to experience a lack of focus, poor memory recall and reduced mental acuity.”

There are times during my days that I will start a sentence, and if interrupted (even for a second) will lose total track of what I was saying and never get it back.  There are words that totally escape me anymore.  I forget having conversations with people.  I forget doing certain tasks….that I just did.

I hate this!

First…I hate it because I never truly understood it when other people were dealing with it.  My mom has been dealing with it for years….and although I say I understood…I didn’t really.  I don’t think anyone truly can unless you have actually had to deal with it.  And it hurts me to think that I used to say to my mom “It’s ok…I understand” and watch her nod as if she agreed that I did.  She knew I didn’t understand.  She does now…but that doesn’t take away the pain I feel for all the times I said “I understand” and she sat there wishing and hoping that she had someone in her life that truly understood what she was going through.

And I hate it….because I am a LOVER of words.  As a writer….I write due to my passion of words; their sounds, their meanings, the way you can manipulate them, interpret them, utilize them, exploit them, harness them….LOVE THEM!

And if I lose my ability to remember these words….how am I going to be able to write?How am I going to be able to express myself?  This was my outlet.  This was my way of getting out everything that I needed to expel from deep inside, instead of keeping it all bottled up festering like I did for so may years.

I don’t want this.  I don’t know how to deal with this.

I am trying.  I just don’t know if I am succeeding.


My Wife’s Favorite Picture



Right now….this is my wife’s favorite picture of me!  She thinks it is absolutely adorable.

I wouldn’t disagree….except for the fact that I was having a really bad vertigo attack at the time.

Now…you may be wondering about the caps…and maybe about the stuffed Panda.

First…the Panda.  His name is Alex.  Alex belonged to my wife René before we met.  After we got together…Alex became mine.  Nuff said.

Now…the caps.  When I am having a really bad attack…I like to have a cap on over my ears.  It helps.  It keeps them warm…keeps out weird noises…..keeps out air….keeps out other things that tend to bother me when I am having vertigo.  So why is Alex wearing one too?

Well…sometimes I toss and turn….and mine falls off.  So….if I put one on Alex…I know that if I wake up and mine is MIA…I can grab his and have a spare handy.

See…makes total sense…doesn’t it??